{"id":17164,"date":"2023-11-14T15:58:09","date_gmt":"2023-11-14T15:58:09","guid":{"rendered":"https:\/\/labpatientengagement.ca\/?page_id=17164"},"modified":"2026-04-30T16:49:31","modified_gmt":"2026-04-30T16:49:31","slug":"testimonials-1","status":"publish","type":"page","link":"https:\/\/labpartners.ca\/?page_id=17164","title":{"rendered":"Successful Examples"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"17164\" class=\"elementor elementor-17164\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a597359 e-flex e-con-boxed e-con e-parent\" data-id=\"a597359\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-2038c85 e-con-full e-flex e-con e-child\" data-id=\"2038c85\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-002f994 elementor-widget elementor-widget-image\" data-id=\"002f994\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"525\" height=\"385\" src=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-30-1024x751.png\" class=\"attachment-large size-large wp-image-19126\" alt=\"\" srcset=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-30-1024x751.png 1024w, https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-30-300x220.png 300w, https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-30-768x563.png 768w, https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-30-1536x1126.png 1536w, https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-30.png 2008w\" sizes=\"(max-width: 525px) 100vw, 525px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4376295 elementor-widget elementor-widget-text-editor\" data-id=\"4376295\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Pictured: Kaenna Dorion, Jack Hickmott, Christine Aiken<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a0c0439 elementor-widget elementor-widget-image\" data-id=\"a0c0439\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"525\" height=\"190\" src=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-29-1024x370.png\" class=\"attachment-large size-large wp-image-19125\" alt=\"\" srcset=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-29-1024x370.png 1024w, https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-29-300x109.png 300w, https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-29-768x278.png 768w, https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-29-1536x556.png 1536w, https:\/\/labpartners.ca\/wp-content\/uploads\/2025\/12\/Screenshot-29.png 1750w\" sizes=\"(max-width: 525px) 100vw, 525px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0f1b6b4 elementor-widget elementor-widget-text-editor\" data-id=\"0f1b6b4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span class=\"TextRun SCXW155062610 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW155062610 BCX0\">&#8220;Being a part of the ABLE team and participating with the <\/span><span class=\"NormalTextRun SCXW155062610 BCX0\">iNeuron<\/span><span class=\"NormalTextRun SCXW155062610 BCX0\"> team, I felt empowered. It was engaging and uplifting. It gave me hope, and I felt the genuine interest shown to those with lived experience\u2026this surpassed my hopes. The posters and poster presenters were a highlight. I learn so much, which, of course, helps me in my ongoing efforts to live well with my vascular dementia. I can\u2019t wait for our next meeting.&#8221;<\/span><\/span><span class=\"TextRun SCXW155062610 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW155062610 BCX0\">\u00a0&#8211; <strong>Christine Aiken, ABLE member<\/strong><\/span><\/span><strong><span class=\"EOP SCXW155062610 BCX0\" data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335551550&quot;:6,&quot;335551620&quot;:6,&quot;335559739&quot;:0,&quot;335559740&quot;:276,&quot;469777462&quot;:[1453],&quot;469777927&quot;:[0],&quot;469777928&quot;:[1]}\">\u00a0<\/span><\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d93712c elementor-widget elementor-widget-video\" data-id=\"d93712c\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/www.youtube.com\\\/watch?v=kq_dEFdekr8&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-53f02b9 elementor-widget elementor-widget-text-editor\" data-id=\"53f02b9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span lang=\"EN-CA\" xml:lang=\"EN-CA\" data-contrast=\"none\"><span>&#8220;Interacting with ABLE members was a highlight of this year&#8217;s <\/span><span>iNeuron<\/span><span>&nbsp;Annual Symposium. I cherished the chance to share my work with patients and caregivers; receiving feedback from ABLE members was&nbsp;<\/span><span>an invaluable and grounding experience that refined my work and communication skills. Science is at its best when researchers and stakeholders collaborate to exchange ideas and perspectives, ensuring that lab work is purpose-built for the real world and meets the needs of the people we aim to assist. Thank&nbsp;<\/span><span>you Team<\/span><span>&nbsp;ABLE for all the work you put in to attend the symposium, to share your stories, and to listen to ours.<\/span><\/span><span lang=\"EN-CA\" xml:lang=\"EN-CA\" data-contrast=\"none\"><span>\u202f&#8221;\u202f \u202f\u202f\u2013 <strong>Jack Hickmott (<\/strong><\/span><strong><span>iNeuron<\/span><span>&nbsp;Trainee)<\/span><\/strong><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d1243ce elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"d1243ce\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><em><strong>Learn More!<\/strong><\/em><\/p><ol><li><em><strong><a class=\"Hyperlink SCXW168061546 BCX0\" href=\"https:\/\/teamineuron.com\/wp-content\/uploads\/2025\/04\/iNeuron-Tip-sheet-new.pdf\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW168061546 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW168061546 BCX0\" data-ccp-charstyle=\"Hyperlink\">Team\u00a0<\/span><span class=\"NormalTextRun SCXW168061546 BCX0\" data-ccp-charstyle=\"Hyperlink\">iNeuron<\/span><span class=\"NormalTextRun SCXW168061546 BCX0\" data-ccp-charstyle=\"Hyperlink\">\u00a0Tip Sheet<\/span><\/span><\/a><span class=\"TextRun SCXW168061546 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW168061546 BCX0\">\u00a0<\/span><span class=\"NormalTextRun SCXW168061546 BCX0\">ABLE members created a resource that consolidated suggestions on ways researchers could better communicate research knowledge to people with lived experience.<\/span><\/span><span class=\"EOP SCXW168061546 BCX0\" data-ccp-props=\"{}\">\u00a0<\/span><\/strong><\/em><\/li><li><p><em><strong><a href=\"https:\/\/teamineuron.com\/wp-content\/uploads\/2024\/11\/iNeuron-Infographic.pdf\">Team\u00a0iNeuron\u00a0Infographic<\/a>\u00a0ABLE team members developed a plain-language infographic describing the structure and objectives of the iNeuron pillars. The infographic was designed to be accessible to people with lived experience (e.g., plain-language use, accessible icons, etc.), and researchers were encouraged to utilize this resource (e.g., during presentations) to better communicate where their research fit within the broader iNeuron project.<\/strong><\/em><\/p><\/li><li><p><em><strong>\u00a0<a href=\"https:\/\/teamineuron.com\/wp-content\/uploads\/2024\/11\/iNeuron-Guidebook.pdf\">Team\u00a0iNeuron\u00a0Guidebook<\/a>\u00a0 ABLE team members created a guidebook to support ABLE members\u2019 understanding of the\u00a0iNeuron\u00a0project. It includes an overview of\u00a0iNeuron\u00a0aims, descriptions of each pillar and cross-cutting theme, including the researchers\u00a0involved\u00a0and their roles, and a glossary that provides plain language definitions of relevant scientific terms. The guidebook is a living document that will continue to be updated as the\u00a0iNeuron\u00a0project progresses.\u00a0\u00a0\u00a0<\/strong><\/em><\/p><\/li><\/ol>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d429b2b elementor-widget elementor-widget-text-editor\" data-id=\"d429b2b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span lang=\"EN-CA\" xml:lang=\"EN-CA\" data-contrast=\"none\">&#8220;ABLE&#8217;s involvement\u00a0 in this year&#8217;s annual symposium played an integral role in fostering team engagement and advancing knowledge mobilization. The ABLE poster award gave ABLE members a meaningful opportunity to learn about the research underway in Team iNeuron, while also allowing our Highly Qualified Personnel to build skills in communicating their work to diverse audiences. These initiatives illustrate the importance of patient engagement, and we are excited to see our collaborations continue to grow with the unwavering contributions of the ABLE team<\/span><span lang=\"EN-CA\" xml:lang=\"EN-CA\" data-contrast=\"none\">&#8220;\u202f \u202f\u202f\u2013 <strong>Carol Schuurmans, Nominated Principal Investigator<\/strong><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-58ddf7b e-con-full e-flex e-con e-child\" data-id=\"58ddf7b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-5e46b44 e-con-full e-flex e-con e-child\" data-id=\"5e46b44\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-10a048e elementor-widget elementor-widget-text-editor\" data-id=\"10a048e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>The Advisory Board of Lived Experience of Stroke, Epilepsy &amp; Dementia (ABLE) &#8211; iNeuron Annual Symposium Poster Competition<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-55920da elementor-widget elementor-widget-text-editor\" data-id=\"55920da\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span data-contrast=\"auto\">The Advisory Board of Lived Experience of Stroke, Epilepsy &amp; Dementia (ABLE) is composed of individuals from across Canada with lived experience of dementia, stroke, and epilepsy, including people diagnosed with these\u00a0conditions\u00a0and friends and family care partners.\u00a0They are part of\u00a0<\/span><a href=\"https:\/\/teamineuron.com\/\"><span data-contrast=\"none\">iNeuron<\/span><\/a><span data-contrast=\"auto\">, a\u00a0<\/span><span data-contrast=\"auto\">Canadian-led, international, interdisciplinary research project focused on the development of novel gene therapies to combat incurable neurological disorders.\u00a0ABLE\u00a0members are provided with training and ongoing support to be engaged as co-collaborators in research &#8211; not study subjects.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p><p><span data-contrast=\"auto\">For the\u00a0second annual\u00a0<\/span><span data-contrast=\"auto\">iNeuron\u00a0symposium (January 21 &#8211; 23, 2025)<\/span><span data-contrast=\"auto\">,\u00a0ABLE\u00a0members\u00a0designed\u00a0a poster award to\u00a0recognize\u00a0a\u00a0trainee who tailored\u00a0their messages to diverse audiences (e.g., people with lived experience).The ABLE award was\u00a0intended to promote\u00a0trainees\u2019\u00a0skills in communicating with non-academic audiences, provide opportunities for\u00a0them\u00a0to connect with ABLE members and bring awareness of a\u00a0<\/span><a href=\"https:\/\/drive.google.com\/file\/d\/1HPFpw4-rxdKyS1YUZImewhgAe_HklKdF\/view?usp=sharing\"><span data-contrast=\"none\">tip sheet<\/span><\/a><span data-contrast=\"auto\">\u00a0for presenting to non-academic audiences, co-developed by ABLE members.\u202f<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p><p><span data-contrast=\"auto\">ABLE members developed a rubric\u00a0for poster judging\u00a0and\u00a0the\u00a0assessment criteria included: (1)\u00a0Use of Plain Language; (2)\u00a0Minimizing Acronyms and Jargon; (3)\u00a0Accessible\u00a0Fonts,\u00a0Colors,\u00a0Text; (4)\u00a0Inclusive and Respectful Language; (5)\u00a0Clear and Slow Speech; (6)\u00a0Good Body Language; (7)\u00a0Welcoming Feedback; (8)\u00a0Enthusiasm and Involvement.\u00a0As\u00a0some of\u00a0the\u00a0ABLE members were new to the role, new\u00a0members were paired\u00a0with\u00a0more experienced members\u00a0to ensure the new members felt comfortable during the poster judging. Each pair of judges\u00a0(2 per pair, 4 in total)\u00a0was assigned\u00a0a set of\u00a0posters\u00a0to review and were provided with clipboards and paper copies of the rubric.\u00a0Posters were evaluated by the judges during dedicated poster sessions where trainees had the opportunity to present their work.\u00a0When the judges were finished evaluating their posters, they\u00a0submitted\u00a0the scoring sheets to an ABLE trainee who tallied the scores. The winner of the poster award was announced by two ABLE members at the end of the meeting during closing remarks.\u00a0\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p><p><span data-contrast=\"auto\">Jack Hickmott, a postdoctoral fellow at\u00a0the\u00a0University of Toronto, received the ABLE award for his presentation \u201cDefinitively Detecting Induced Neurons in a Mouse Model of Ischemic Stroke\u201d.\u00a0J<\/span><span data-contrast=\"auto\">ack\u00a0was offered\u00a0an award<\/span><span data-contrast=\"auto\">\u00a0of\u00a0$500\u00a0(which he donated back to ABLE!) and was invited\u00a0to\u00a0present\u00a0his\u00a0research to the ABLE members and\u00a0leads\u00a0at a\u00a0future\u00a0ABLE program meeting.\u202fAs one of their\u00a0objectives, ABLE continues to prioritize\u00a0<\/span><span data-contrast=\"none\">active inclusion in annual\u00a0iNeuron\u00a0conference programs, particularly focusing\u00a0on trainee\u00a0engagement.\u00a0\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p><p><span data-contrast=\"none\">ABLE members valued the experience of interacting one-on-one with trainees and hearing about their research. They had time to ask questions and connect with trainees to share their own lived\u00a0experience<\/span><span data-contrast=\"auto\">.\u00a0They appreciated learning about research and sharing trainees\u2019 enthusiasm for their work.\u00a0<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p><p><span data-contrast=\"auto\">A major challenge of this award was the lack of registration prior to the annual symposium. Few trainees registered in advance,\u00a0likely due to\u00a0unfamiliarity with ABLE, competing responsibilities, or missing the email notice.\u00a0Ultimately, the\u00a0ABLE team\u00a0attached a half-page flyer to all poster boards so trainees would see it when displaying their posters. This allowed anyone to\u00a0participate\u00a0or opt out. As a result of this, trainees who previously registered for the award had the opportunity to review and prepare their presentations with the rubric and tip sheet.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p><p><span data-contrast=\"auto\">Lived experience brings essential insight\u00a0to\u00a0health research, education, and policy. Engaging people affected by illness and those who support them enriches understanding, challenges traditional knowledge hierarchies, and fosters more inclusive and person-centered approaches. For trainees, direct interaction with people with lived experience (PWLE) cultivates empathy, critical thinking, and ethical awareness. ABLE participants collectively feel that tools like poster presentations create impactful, teachable moments that center lived experience as a valued form of\u00a0expertise.<\/span><span data-ccp-props=\"{}\">\u00a0<\/span><\/p><p><span style=\"font-size: 1rem;\"><strong>Team Members Involved<\/strong>: <\/span><span class=\"NormalTextRun SCXW66511801 BCX0\" style=\"font-size: 1rem;\">\u00a0Jennifer Bethell, Carrie\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW66511801 BCX0\" style=\"font-size: 1rem;\">McAiney<\/span><span class=\"NormalTextRun SCXW66511801 BCX0\" style=\"font-size: 1rem;\">, Julia Jacobs-Levan, Ellen Snowball, Katelyn Wheeldon, Netanya Winterburn, Catherine Anne Kelly, Christine Aiken, Cyndi Barron, Derek Payne, Duane Froese, Ed Mitchell, Karen Myers Barnett, Karli Tanner, Laura\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW66511801 BCX0\" style=\"font-size: 1rem;\">Stronghill<\/span><span class=\"NormalTextRun SCXW66511801 BCX0\" style=\"font-size: 1rem;\">, Meghan Lau, Paul Lea, Sandy Morter, Skylar Yanke, Susan Wulf, Torie Robinson,\u00a0<\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW66511801 BCX0\" style=\"font-size: 1rem;\">Kaenna<\/span><span class=\"NormalTextRun SCXW66511801 BCX0\" style=\"font-size: 1rem;\">\u00a0Doiron\u00a0<\/span><\/p><p><span class=\"TextRun SCXW209973603 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW209973603 BCX0\"><strong>Institutions\/Organizations Involved<\/strong>:<\/span><span class=\"NormalTextRun SCXW209973603 BCX0\">\u00a0University Health Network, Toronto Rehabilitation Institute (Bethell)<\/span><span class=\"NormalTextRun SCXW209973603 BCX0\">,\u00a0<\/span><span class=\"NormalTextRun SCXW209973603 BCX0\">University of Waterloo (<\/span><span class=\"NormalTextRun SpellingErrorV2Themed SCXW209973603 BCX0\">McAiney<\/span><span class=\"NormalTextRun SCXW209973603 BCX0\">)<\/span><span class=\"NormalTextRun SCXW209973603 BCX0\">,\u00a0<\/span><span class=\"NormalTextRun SCXW209973603 BCX0\">University of Calgary, Hotchkiss Brain Institute (Jacobs Le Van)<\/span><\/span><span class=\"EOP SCXW209973603 BCX0\" data-ccp-props=\"{}\">\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-section elementor-top-section elementor-element elementor-element-30f4826f elementor-section-full_width elementor-section-stretched elementor-section-height-default elementor-section-height-default\" data-id=\"30f4826f\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-277fd8cb\" data-id=\"277fd8cb\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-section elementor-inner-section elementor-element elementor-element-435d9444 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"435d9444\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-626eb3c8\" data-id=\"626eb3c8\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2adfef97 elementor-widget__width-initial elementor-widget elementor-widget-image\" data-id=\"2adfef97\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"720\" height=\"480\" src=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Dr.-David-Weinstein.png\" class=\"attachment-full size-full wp-image-19040\" alt=\"\" srcset=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Dr.-David-Weinstein.png 720w, https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Dr.-David-Weinstein-300x200.png 300w, https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Dr.-David-Weinstein-600x400.png 600w\" sizes=\"(max-width: 720px) 100vw, 720px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-inner-column elementor-element elementor-element-6b3847bc\" data-id=\"6b3847bc\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-592cf2b6 p-tag-info elementor-widget elementor-widget-section-title\" data-id=\"592cf2b6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"section-title.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"pt-section pt-style-1 text-left\">\r\n\t\t\r\n   \t\t   \t\t\t   <h5 class=\"pt-section-title\" >Making Research Matter for Families - Dr. David Weinstein <\/h5>\r\n\t\t\t\r\n<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-38c00c1b elementor-widget elementor-widget-text-editor\" data-id=\"38c00c1b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span data-contrast=\"none\">Dr. David Weinstein and his team studied a rare disease in <span class=\"TextRun SCXW47147717 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun CommentStart SCXW47147717 BCX0\">children<\/span><\/span> called Glycogen Storage Disease Type 1a. C<span class=\"TextRun SCXW47147717 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun CommentStart SCXW47147717 BCX0\">hildren <\/span><\/span>with this disease need corn starch often to manage their condition. Talking to parents, they realized that children with this condition needed a treatment to help them stay healthy throughout the night without needing to wake up every few hours to take their medication. Dr. Weinstein&#8217;s team worked with families to find a solution. They created a slow-release treatment that was approved. This made a big difference in the <span class=\"TextRun SCXW47147717 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun CommentStart SCXW47147717 BCX0\">children<\/span><\/span>\u00a0and families&#8217; lives. <\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559738&quot;:300,&quot;335559739&quot;:300,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><p><span data-contrast=\"none\">Dr. Weinstein&#8217;s team also asked patients and doctors what they thought were the most important things to study about this disease. They worked together and came up with a list of the most important things to research.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559738&quot;:300,&quot;335559739&quot;:300,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><p><span data-contrast=\"none\">Ultimately, Dr. Weinstein and his team listened to families, identified and developed a treatment to improve the quality of life of patients and their families, and asked everyone what should be studied next. This teamwork made things better for the <span class=\"TextRun SCXW47147717 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun CommentStart SCXW47147717 BCX0\">children<\/span><\/span>\u00a0and their families, and helped researchers know what to focus on.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559738&quot;:300,&quot;335559739&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><p>Read articles:<br \/><a style=\"font-family: var( --e-global-typography-text-font-family ), Sans-serif; font-weight: var( --e-global-typography-text-font-weight ); font-size: 1rem;\" href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/31587328\/\">Research priorities for liver glycogen storage disease: An international priority setting partnership with the James Lind Alliance<\/a><br \/><a style=\"font-family: var( --e-global-typography-text-font-family ), Sans-serif; font-weight: var( --e-global-typography-text-font-weight ); font-size: 1rem;\" href=\"https:\/\/blogs.bmj.com\/openscience\/2018\/06\/05\/can-patients-be-involved-in-preclinical-research\/\">Can patients be involved in preclinical research?<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-4f776b6 e-flex e-con-boxed e-con e-parent\" data-id=\"4f776b6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2a31b1a elementor-widget elementor-widget-spacer\" data-id=\"2a31b1a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-section elementor-top-section elementor-element elementor-element-3a51d12 elementor-section-full_width elementor-section-stretched elementor-section-height-default elementor-section-height-default\" data-id=\"3a51d12\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5578ee2\" data-id=\"5578ee2\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-section elementor-inner-section elementor-element elementor-element-1a47c2e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1a47c2e\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-84e66d9\" data-id=\"84e66d9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-850c023 elementor-widget elementor-widget-image\" data-id=\"850c023\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"525\" height=\"308\" src=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Emma-Gerber.jpg\" class=\"attachment-large size-large wp-image-19042\" alt=\"\" srcset=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Emma-Gerber.jpg 635w, https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Emma-Gerber-300x176.jpg 300w, https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Emma-Gerber-600x351.jpg 600w\" sizes=\"(max-width: 525px) 100vw, 525px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-inner-column elementor-element elementor-element-7385b6e\" data-id=\"7385b6e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f881201 p-tag-info elementor-widget elementor-widget-section-title\" data-id=\"f881201\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"section-title.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"pt-section pt-style-1 text-left\">\r\n\t\t\r\n   \t\t   \t\t\t   <h5 class=\"pt-section-title\" >Engaging Patients in Ph.D Ovarian Cancer Research - Emma Gerber<\/h5>\r\n\t\t\t\r\n<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bb9e506 elementor-widget elementor-widget-text-editor\" data-id=\"bb9e506\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span class=\"TextRun SCXW37343927 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW37343927 BCX0\">As an ovarian cancer research trainee, I know the important statistics and molecular mechanisms related to this disease. However, I lacked a human connection to what I was studying. After learning about patient engagement, I recognized its potential value, but did not know how to begin engaging patient partners in my research. Thanks to support from my university and Ovarian Cancer Canada\u2019s Patient Partners in Research group, I was able to connect with a panel of patient partners with lived experience of ovarian cancer to discuss engagement opportunities in my PhD thesis project. The prospect of engaging with patients in discussions excited me, and the panel&#8217;s enthusiasm was contagious. Based on their lived experiences they highlighted the importance of <\/span><span class=\"NormalTextRun SCXW37343927 BCX0\">identifying<\/span><span class=\"NormalTextRun SCXW37343927 BCX0\"> minimally invasive biomarkers to guide ovarian cancer treatment. Importantly, input provided by patient partners enhanced my planned studies. For example, comparing biomarkers of interest at <\/span><span class=\"NormalTextRun SCXW37343927 BCX0\">initial<\/span><span class=\"NormalTextRun SCXW37343927 BCX0\"> diagnosis and in a recurrent setting was suggested, which had not been originally included in my research plan. Embarking on this journey of patient engagement as a graduate student has been immensely rewarding. As someone without a personal connection to ovarian cancer, this experience has transformed my research, infusing it with a sense of grounding and humanity. Amidst the challenges of academic research, this has been a powerful source of motivation. Having had this experience early in my career motivates me to pursue future research collaboratively with those who have lived experience of the conditions being studied.<\/span><\/span><span class=\"EOP SCXW37343927 BCX0\" data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559738&quot;:300,&quot;335559739&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5946265 e-flex e-con-boxed e-con e-parent\" data-id=\"5946265\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-96b7e95 elementor-widget elementor-widget-spacer\" data-id=\"96b7e95\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-section elementor-top-section elementor-element elementor-element-4bf76bc elementor-section-full_width elementor-section-stretched elementor-section-height-default elementor-section-height-default\" data-id=\"4bf76bc\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-59e7883\" data-id=\"59e7883\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-section elementor-inner-section elementor-element elementor-element-b622ab4 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b622ab4\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-0e0f25c\" data-id=\"0e0f25c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1365215 elementor-widget elementor-widget-image\" data-id=\"1365215\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/NPSPLogo_HR_Col_Stack-600x457.png\" title=\"NPSPLogo_HR_Col_Stack\" alt=\"NPSPLogo_HR_Col_Stack\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-inner-column elementor-element elementor-element-d96f258\" data-id=\"d96f258\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e80e624 p-tag-info elementor-widget elementor-widget-section-title\" data-id=\"e80e624\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"section-title.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"pt-section pt-style-1 text-left\">\r\n\t\t\r\n   \t\t   \t\t\t   <h5 class=\"pt-section-title\" >Sepsis Canada and the National Preclinical Sepsis Platform <\/h5>\r\n\t\t\t\r\n<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-612f6ea elementor-widget elementor-widget-text-editor\" data-id=\"612f6ea\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span data-contrast=\"none\">The National Preclinical Sepsis Platform (NPSP) provides an example of how patient engagement can shape preclinical laboratory research. The NPSP includes patient partners who are identifying new perspectives and priorities for sepsis (severe infection, which can lead to organ dysfunction) research. Though still in the early stages of their project, through attendance at laboratory meetings, patient partners have identified several clinically relevant outcomes that would be of interest to measure in animal experiments.\u202f\u202f<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559738&quot;:300,&quot;335559739&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><p><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><span data-contrast=\"none\">To take a thoughtful and tailored approach, the group held an icebreaker\/ non-technical session to discuss the NPSP goals, the experimental model and patient partner questions, and worked as a team to co-develop terms of reference.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><p><span data-contrast=\"none\">Additionally, the team has worked together on several grant applications to fund a priority-setting exercise (to identify a patient-important question that could be assessed in a sepsis mouse model), co-conduct of a preclinical systematic review to address this question, and eventually co-development of a laboratory experiment to further study the identified question of interest. <\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><p><span data-contrast=\"none\">By working with patient partners from the start (e.g., grant\/project development) to identify shared goals, the team believes this will have important downstream impact, by ensuring their research is relevant to the patient community.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559739&quot;:160,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cb499d8 elementor-widget elementor-widget-spacer\" data-id=\"cb499d8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-section elementor-inner-section elementor-element elementor-element-1b7fe8d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1b7fe8d\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-df21b65\" data-id=\"df21b65\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2483a35 elementor-widget elementor-widget-image\" data-id=\"2483a35\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"360\" height=\"169\" src=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Picture1-1.png\" class=\"attachment-1536x1536 size-1536x1536 wp-image-18933\" alt=\"\" srcset=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Picture1-1.png 360w, https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Picture1-1-300x141.png 300w\" sizes=\"(max-width: 360px) 100vw, 360px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-inner-column elementor-element elementor-element-26e9ca5\" data-id=\"26e9ca5\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-30a0318 p-tag-info elementor-widget elementor-widget-section-title\" data-id=\"30a0318\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"section-title.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"pt-section pt-style-1 text-left\">\r\n\t\t\r\n   \t\t   \t\t\t   <h5 class=\"pt-section-title\" >Public Involvement in Research Funding Processes - Parkinson&#039;s UK<\/h5>\r\n\t\t\t\r\n<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0b1b703 elementor-widget elementor-widget-text-editor\" data-id=\"0b1b703\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span data-contrast=\"none\">Parkinson&#8217;s UK is the largest European charitable funder of Parkinson&#8217;s research, granting approximately \u00a38m annually in medical research, both clinical and non-clinical<\/span><span data-contrast=\"none\">.\u00a0 <\/span><span data-contrast=\"none\">Parkinson\u2019s UK believes that the feedback from people affected by Parkinson\u2019s makes a difference and improves the way the charity does things for people affected by Parkinson\u2019s. Involving people living with Parkinson\u2019s in research funding decisions lets the Parkinson\u2019s community know that they are being listened to and that they have a say in the research being funded by the charity.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:1,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335557856&quot;:16777215,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:270}\">\u00a0<\/span><\/p><p><span data-contrast=\"none\">Parkinson\u2019s UK has involved lay grant reviewers in its funding decisions for almost 20 years. People affected by Parkinson\u2019s have also been involved in shaping the charity\u2019s research strategy, via the Research Strategy Board. Through reflective practice and evaluation, this work continues to improve, serving the mission of Parkinson\u2019s UK to improve life for everyone affected by Parkinson\u2019s.<\/span><span data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;201341983&quot;:1,&quot;335551550&quot;:1,&quot;335551620&quot;:1,&quot;335557856&quot;:16777215,&quot;335559738&quot;:0,&quot;335559739&quot;:0,&quot;335559740&quot;:270}\">\u00a0<\/span><\/p><p><span data-contrast=\"none\">Parkinson\u2019s UK believes the value and strength of the lay grant reviewer role is that the personal experience of living with Parkinson\u2019s is brought to the research grants funding process. Through consultation and refinement, Parkinson\u2019s UK has developed approaches and processes to support meaningful involvement in grant funding. This has included training courses, specific lay grant reviewer review forms &#8211; tailored to the perspective of people living with Parkinson\u2019s &#8211; and more detailed plain English sections of grant applications so lay grant reviewers can fully understand the applications.\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-173289a elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"173289a\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-96a9196\" data-id=\"96a9196\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t<div class=\"elementor-element elementor-element-5cb0082 e-grid e-con-boxed e-con e-parent\" data-id=\"5cb0082\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Pictured: Kaenna Dorion, Jack Hickmott, Christine Aiken &#8220;Being a part of the ABLE team and participating with the iNeuron team, I felt empowered. It was engaging and uplifting. It gave me hope, and I felt the genuine interest shown to those with lived experience\u2026this surpassed my hopes. The posters and poster presenters were a highlight. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-17164","page","type-page","status-publish","hentry"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/pages\/17164","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/labpartners.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=17164"}],"version-history":[{"count":101,"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/pages\/17164\/revisions"}],"predecessor-version":[{"id":19173,"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/pages\/17164\/revisions\/19173"}],"wp:attachment":[{"href":"https:\/\/labpartners.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=17164"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}