{"id":17375,"date":"2023-11-17T16:49:16","date_gmt":"2023-11-17T16:49:16","guid":{"rendered":"https:\/\/labpatientengagement.ca\/?page_id=17375"},"modified":"2026-04-17T13:10:56","modified_gmt":"2026-04-17T13:10:56","slug":"researchers-2","status":"publish","type":"page","link":"https:\/\/labpartners.ca\/?page_id=17375","title":{"rendered":"Researchers"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"17375\" class=\"elementor elementor-17375\">\n\t\t\t\t\t\t<div class=\"elementor-section elementor-inner-section elementor-element elementor-element-3b566149 elementor-reverse-tablet elementor-reverse-mobile elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3b566149\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-389af4c9\" data-id=\"389af4c9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3e4a94e5 elementor-widget elementor-widget-section-title\" data-id=\"3e4a94e5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"section-title.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"pt-section pt-style-1 text-left\">\r\n\t\t\r\n   \t\t   \t\t\t   <h5 class=\"pt-section-title\" >Resources for Researchers<\/h5>\r\n\t\t\t\r\n<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e2d08d9 elementor-widget elementor-widget-text-editor\" data-id=\"e2d08d9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Engaging patients in preclinical laboratory research can help to improve research relevance and quality, allows for mutual learning opportunities (e.g. researchers can learn more about the day-to-day realities of the condition they study and patients can learn more about ongoing research), and can enhance researcher communication skills. Patient engagement does not refer to participation in research (e.g. sample donation, advocacy). Rather, it is about the active involvement of patient partners throughout the full research process including being involved in priority setting, question development, and dissemination of results.<\/p><p>Ultimately, engaging patients at this early stage of research, when therapies are first being developed and tested, may help to streamline research efforts through a collaborative approach.<\/p><p><span class=\"NormalTextRun SCXW154231975 BCX0\">To learn more, see below for\u00a0<\/span><span class=\"NormalTextRun SCXW154231975 BCX0\">considerations and resources for research teams.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-36912e9 elementor-widget elementor-widget-text-editor\" data-id=\"36912e9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 600; font-size: 24px;\">&#8220;We wanted to keep things out in the open, to help the [glycogen storage disease] community feel part of the research, to feel invested and empowered &#8221; &#8211;\u00a0<\/span><a style=\"font-size: 24px;\" href=\"https:\/\/blogs.bmj.com\/openscience\/2018\/06\/05\/can-patients-be-involved-in-preclinical-research\/\">Dr. David Weinstein<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-4a8361bb\" data-id=\"4a8361bb\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-195954ea elementor-invisible elementor-widget elementor-widget-image\" data-id=\"195954ea\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInRight&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"400\" height=\"490\" src=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2023\/12\/ohri-research-main.jpg\" class=\"attachment-full size-full wp-image-18400\" alt=\"\" srcset=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2023\/12\/ohri-research-main.jpg 400w, https:\/\/labpartners.ca\/wp-content\/uploads\/2023\/12\/ohri-research-main-245x300.jpg 245w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-section elementor-top-section elementor-element elementor-element-3dc61118 elementor-section-full_width elementor-section-stretched elementor-section-height-default elementor-section-height-default\" data-id=\"3dc61118\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-7d1ec9c1 elementor-hidden-tablet elementor-hidden-mobile\" data-id=\"7d1ec9c1\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-b5cc16b\" data-id=\"b5cc16b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e080104 elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"e080104\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-clipboard-list\" viewBox=\"0 0 384 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M336 64h-80c0-35.3-28.7-64-64-64s-64 28.7-64 64H48C21.5 64 0 85.5 0 112v352c0 26.5 21.5 48 48 48h288c26.5 0 48-21.5 48-48V112c0-26.5-21.5-48-48-48zM96 424c-13.3 0-24-10.7-24-24s10.7-24 24-24 24 10.7 24 24-10.7 24-24 24zm0-96c-13.3 0-24-10.7-24-24s10.7-24 24-24 24 10.7 24 24-10.7 24-24 24zm0-96c-13.3 0-24-10.7-24-24s10.7-24 24-24 24 10.7 24 24-10.7 24-24 24zm96-192c13.3 0 24 10.7 24 24s-10.7 24-24 24-24-10.7-24-24 10.7-24 24-24zm128 368c0 4.4-3.6 8-8 8H168c-4.4 0-8-3.6-8-8v-16c0-4.4 3.6-8 8-8h144c4.4 0 8 3.6 8 8v16zm0-96c0 4.4-3.6 8-8 8H168c-4.4 0-8-3.6-8-8v-16c0-4.4 3.6-8 8-8h144c4.4 0 8 3.6 8 8v16zm0-96c0 4.4-3.6 8-8 8H168c-4.4 0-8-3.6-8-8v-16c0-4.4 3.6-8 8-8h144c4.4 0 8 3.6 8 8v16z\"><\/path><\/svg>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3c268362 elementor-widget elementor-widget-heading\" data-id=\"3c268362\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Guiding Framework for Patient Engagement in Preclinical Laboratory Research<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2bacd1ba elementor-widget elementor-widget-text-editor\" data-id=\"2bacd1ba\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<span style=\"color: #7a7a7a; font-size: 18px;\">Our team has developed a guiding process framework that breaks down the stages of preclinical research and identifies opportunities for patient engagement.<\/span>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-30d36bbd elementor-widget elementor-widget-Button\" data-id=\"30d36bbd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"Button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\r\n\r\n  <div class=\"pt-btn-container\">\r\n        <a class=\"pt-button pt-button-flat\" href=\"https:\/\/labpartners.ca\/?page_id=17688\">\r\n          <div class=\"pt-button-block\">\r\n          <span class=\"pt-button-text\">  Read More<\/span>\r\n            <i class=\"ion ion-plus-round\"><\/i>\r\n          <\/div>\r\n        <\/a>\r\n  <\/div>\r\n\r\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-706ea66f elementor-hidden-tablet elementor-hidden-mobile\" data-id=\"706ea66f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-section elementor-top-section elementor-element elementor-element-c69d82b elementor-section-full_width elementor-section-stretched elementor-section-height-default elementor-section-height-default\" data-id=\"c69d82b\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-5741ce6 elementor-hidden-tablet elementor-hidden-mobile\" data-id=\"5741ce6\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-ff8916d\" data-id=\"ff8916d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ffae0f7 elementor-widget elementor-widget-heading\" data-id=\"ffae0f7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Considerations for Researchers When Engaging Patient Partners in Preclinical Laboratory Research<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-cdb32ab e-flex e-con-boxed e-con e-parent\" data-id=\"cdb32ab\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-64d1f1d e-flex e-con-boxed e-con e-child\" data-id=\"64d1f1d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a792250 elementor-widget__width-initial elementor-widget elementor-widget-n-accordion\" data-id=\"a792250\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;default_state&quot;:&quot;all_collapsed&quot;,&quot;max_items_expended&quot;:&quot;one&quot;,&quot;n_accordion_animation_duration&quot;:{&quot;unit&quot;:&quot;ms&quot;,&quot;size&quot;:400,&quot;sizes&quot;:[]}}\" data-widget_type=\"nested-accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"e-n-accordion\" aria-label=\"Accordion. Open links with Enter or Space, close with Escape, and navigate with Arrow Keys\">\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1750\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"1\" tabindex=\"0\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1750\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> <h2 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"line-height: 1;font-size: 26px;color:#54595F;text-align: left\">Circulating An Advert And Connecting With Patient Partners<\/h2> <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><i aria-hidden=\"true\" class=\"ion ion-arrow-up-b\"><\/i><\/span>\n\t\t\t<span class='e-closed'><i aria-hidden=\"true\" class=\"ion ion-arrow-down-b\"><\/i><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1750\" class=\"elementor-element elementor-element-35aa7de e-con-full e-flex e-con e-child\" data-id=\"35aa7de\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-988ea01 elementor-widget elementor-widget-text-editor\" data-id=\"988ea01\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">When first getting started we recommend reaching out for help! There are a number of organizations and groups with expertise in engagement who can provide guidance, resources and help to connect you with patients interested in engaging in research. When starting a new engagement initiative we often reach out to organizations that we have a working relationship with to help us share an advertisement to identify interested patient partners.<\/p><p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">We recommend checking to see if your local institution has a centre or individuals with expertise. For instance \u2013 within the Ottawa Hospital there is an Office for Patient Engagement in Research Activities (<a href=\"https:\/\/www.ohri.ca\/opera\" target=\"_blank\" rel=\"noopener\">OPERA<\/a>) which provides consultations and can help you to connect with patient partners. Each province also has a <a href=\"https:\/\/cihr-irsc.gc.ca\/e\/45859.html\">Strategy for Patient Oriented Research (SPOR) SUPPORT Unit<\/a> \u2013 which can provide resources and may have available funding opportunities. Another idea is to make connections with relevant patient organizations.<\/p><p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">To develop an advertisement to identify interested patient partners, it is important to reflect on your goals for patient engagement, and to provide key details for consideration (I.e., anticipated time commitment, compensation, supports). See below for an example and click the button for more details.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1750\" class=\"elementor-element elementor-element-1465b85 e-flex e-con-boxed e-con e-child\" data-id=\"1465b85\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c6328f0 elementor-widget elementor-widget-Button\" data-id=\"c6328f0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"Button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\r\n\r\n  <div class=\"pt-btn-container\">\r\n        <a class=\"pt-button pt-button-flat\" href=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/SR-Recruitment-Poster-30-1-22-002-1.pdf\">\r\n          <div class=\"pt-button-block\">\r\n          <span class=\"pt-button-text\">Example<\/span>\r\n            <i class=\"ion ion-plus-round\"><\/i>\r\n          <\/div>\r\n        <\/a>\r\n  <\/div>\r\n\r\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fcf5f5a elementor-widget elementor-widget-Button\" data-id=\"fcf5f5a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"Button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\r\n\r\n  <div class=\"pt-btn-container\">\r\n        <a class=\"pt-button pt-button-flat\" href=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/03\/Advert_template.pdf\">\r\n          <div class=\"pt-button-block\">\r\n          <span class=\"pt-button-text\">TEMPLATE<\/span>\r\n            <i class=\"ion ion-plus-round\"><\/i>\r\n          <\/div>\r\n        <\/a>\r\n  <\/div>\r\n\r\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0c5c498 elementor-widget elementor-widget-Button\" data-id=\"0c5c498\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"Button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\r\n\r\n  <div class=\"pt-btn-container\">\r\n        <a class=\"pt-button pt-button-flat\" href=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2024\/05\/What-to-put-in-an-advert.pdf\">\r\n          <div class=\"pt-button-block\">\r\n          <span class=\"pt-button-text\">HELPFUL TIPS<\/span>\r\n            <i class=\"ion ion-plus-round\"><\/i>\r\n          <\/div>\r\n        <\/a>\r\n  <\/div>\r\n\r\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1751\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"2\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1751\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> <h2 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"line-height: 1;font-size: 26px;color:#54595F;text-align: left\">Onboarding<\/h2> <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><i aria-hidden=\"true\" class=\"ion ion-arrow-up-b\"><\/i><\/span>\n\t\t\t<span class='e-closed'><i aria-hidden=\"true\" class=\"ion ion-arrow-down-b\"><\/i><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1751\" class=\"elementor-element elementor-element-e782128 e-con-full e-flex e-con e-child\" data-id=\"e782128\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3cdd07c elementor-widget elementor-widget-text-editor\" data-id=\"3cdd07c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">Once you have identified interested patient partners, it\u2019s then important to hold an onboarding meeting (or meetings). During this time, you can further discuss each team members\u2019 expectations for the partnership, patient partner interests, and time commitment\/availability. At this or subsequent meetings you may also further describe and discuss your research, and begin to discuss ideas for working together (see our\u00a0<a href=\"https:\/\/labpartners.ca\/?page_id=17688\" target=\"_blank\" rel=\"noopener\">Framework page<\/a>\u00a0for ideas).<\/p><p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><strong>Key Considerations for Onboarding Meetings:\u00a0<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e83e461 e-n-tabs-mobile elementor-widget elementor-widget-n-tabs\" data-id=\"e83e461\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;horizontal_scroll&quot;:&quot;disable&quot;}\" data-widget_type=\"nested-tabs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"e-n-tabs\" data-widget-number=\"243524705\" aria-label=\"Tabs. Open items with Enter or Space, close with Escape and navigate using the Arrow keys.\">\n\t\t\t<div class=\"e-n-tabs-heading\" role=\"tablist\">\n\t\t\t\t\t<button id=\"e-n-tab-title-2435247051\" data-tab-title-id=\"e-n-tab-title-2435247051\" class=\"e-n-tab-title\" aria-selected=\"true\" data-tab-index=\"1\" role=\"tab\" tabindex=\"0\" aria-controls=\"e-n-tab-content-2435247051\" style=\"--n-tabs-title-order: 1;\">\n\t\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tAccessible Vocabulary &amp; Materials\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t<button id=\"e-n-tab-title-2435247052\" data-tab-title-id=\"e-n-tab-title-2435247052\" class=\"e-n-tab-title\" aria-selected=\"false\" data-tab-index=\"2\" role=\"tab\" tabindex=\"-1\" aria-controls=\"e-n-tab-content-2435247052\" style=\"--n-tabs-title-order: 2;\">\n\t\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tInterests &amp; Availability\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t<button id=\"e-n-tab-title-2435247053\" data-tab-title-id=\"e-n-tab-title-2435247053\" class=\"e-n-tab-title\" aria-selected=\"false\" data-tab-index=\"3\" role=\"tab\" tabindex=\"-1\" aria-controls=\"e-n-tab-content-2435247053\" style=\"--n-tabs-title-order: 3;\">\n\t\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tSupportive Environment\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t<button id=\"e-n-tab-title-2435247054\" data-tab-title-id=\"e-n-tab-title-2435247054\" class=\"e-n-tab-title\" aria-selected=\"false\" data-tab-index=\"4\" role=\"tab\" tabindex=\"-1\" aria-controls=\"e-n-tab-content-2435247054\" style=\"--n-tabs-title-order: 4;\">\n\t\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tMaintain Communication\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t\t<\/div>\n\t\t\t<div class=\"e-n-tabs-content\">\n\t\t\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1751 e-n-tab-title-2435247051\" id=\"e-n-tab-content-2435247051\" data-tab-index=\"1\" style=\"--n-tabs-title-order: 1;\" class=\"e-active elementor-element elementor-element-a4b5560 e-con-full e-flex e-con e-child\" data-id=\"a4b5560\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-03cccb1 elementor-widget elementor-widget-text-editor\" data-id=\"03cccb1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span class=\"TextRun SCXW156485124 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW156485124 BCX0\">Throughout the project, it is essential that team members use a shared vocabulary. Try to avoid the use of technical terms and <\/span><span class=\"NormalTextRun ContextualSpellingAndGrammarErrorV2Themed SCXW156485124 BCX0\">acronyms, or<\/span><span class=\"NormalTextRun SCXW156485124 BCX0\"> take the time to ensure these terms are well-explained. It is also important to develop accessible materials (e.g., slides, infographics, non-technical summaries) to help explain the research project and concepts.<\/span><\/span><span class=\"EOP SCXW156485124 BCX0\" data-ccp-props=\"{&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20}\">\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1751 e-n-tab-title-2435247052\" id=\"e-n-tab-content-2435247052\" data-tab-index=\"2\" style=\"--n-tabs-title-order: 2;\" class=\" elementor-element elementor-element-253a06d e-con-full e-flex e-con e-child\" data-id=\"253a06d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-35a3242 elementor-widget elementor-widget-text-editor\" data-id=\"35a3242\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span class=\"TextRun SCXW12151062 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW12151062 BCX0\">Discuss<\/span><\/span><span class=\"TextRun SCXW12151062 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW12151062 BCX0\" data-ccp-charstyle=\"normaltextrun\" data-ccp-charstyle-defn=\"{&quot;ObjectId&quot;:&quot;7cf6345d-5226-4452-b446-7316231ffd5b|122&quot;,&quot;ClassId&quot;:1073872969,&quot;Properties&quot;:[469775450,&quot;normaltextrun&quot;,201340122,&quot;1&quot;,134233614,&quot;true&quot;,469778129,&quot;normaltextrun&quot;,335572020,&quot;1&quot;,469778324,&quot;Default Paragraph Font&quot;]}\"> patient partner interests and availability and co-develop activities that are tailored based on patient partner preferences<\/span><\/span><span class=\"TextRun SCXW12151062 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW12151062 BCX0\">.<\/span><\/span><span class=\"EOP SCXW12151062 BCX0\" data-ccp-props=\"{&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20}\">\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1751 e-n-tab-title-2435247053\" id=\"e-n-tab-content-2435247053\" data-tab-index=\"3\" style=\"--n-tabs-title-order: 3;\" class=\" elementor-element elementor-element-d4e9e0a e-con-full e-flex e-con e-child\" data-id=\"d4e9e0a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-be12a4f elementor-widget elementor-widget-text-editor\" data-id=\"be12a4f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span class=\"TextRun SCXW20793425 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW20793425 BCX0\">Aim to create a supportive environment where partners feel comfortable to contribute their ideas, take part in discussions and ask questions.<\/span><\/span><span class=\"EOP SCXW20793425 BCX0\" data-ccp-props=\"{&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20}\">\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1751 e-n-tab-title-2435247054\" id=\"e-n-tab-content-2435247054\" data-tab-index=\"4\" style=\"--n-tabs-title-order: 4;\" class=\" elementor-element elementor-element-eefde90 e-flex e-con-boxed e-con e-child\" data-id=\"eefde90\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f893e59 elementor-widget elementor-widget-text-editor\" data-id=\"f893e59\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span class=\"TextRun SCXW235329334 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW235329334 BCX0\">As with any collaboration, it is <\/span><span class=\"NormalTextRun SCXW235329334 BCX0\">very important<\/span><span class=\"NormalTextRun SCXW235329334 BCX0\"> to <\/span><span class=\"NormalTextRun SCXW235329334 BCX0\">maintain<\/span><span class=\"NormalTextRun SCXW235329334 BCX0\"> communication throughout the project. <\/span><span class=\"NormalTextRun AdvancedProofingIssueV2Themed SCXW235329334 BCX0\">Patient partners should be kept up to date on project progress (as well as delays in the project).<\/span><\/span><span class=\"EOP SCXW235329334 BCX0\" data-ccp-props=\"{&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20}\">\u00a0<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1752\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"3\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1752\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> <h2 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"line-height: 1;font-size: 26px;color:#54595F;text-align: left\">Terms Of Reference\u200b<\/h2> <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><i aria-hidden=\"true\" class=\"ion ion-arrow-up-b\"><\/i><\/span>\n\t\t\t<span class='e-closed'><i aria-hidden=\"true\" class=\"ion ion-arrow-down-b\"><\/i><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1752\" class=\"elementor-element elementor-element-e4037a7 e-con-full e-flex e-con e-child\" data-id=\"e4037a7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ac69d72 elementor-widget elementor-widget-text-editor\" data-id=\"ac69d72\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">After initial onboarding, patient partners still interested in joining should then work together with the team to co-create a terms of reference. This document is meant to outline a shared set of expectations to ensure everyone is \u2018on the same page\u2019. The terms of reference also provides an opportunity to discuss and brainstorm goals for patient engagement and how you would like to work together. Though it is important for the research team to reflect on their goals in advance and to come prepared with ideas for working together, it is also important to discuss these with patient partners. Make time to hear their ideas and co-develop a plan together.<\/p><ul><li style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">The terms of reference can be drafted by the team from initial onboarding discussions, then shared with patient partners for input and feedback.<\/li><li style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">Once the terms of reference draft has been shared, we find it is helpful to host a meeting to discuss the contents to obtain patient partner input. Once feedback has been incorporated, this version should be shared with all team members.<\/li><li style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">Treat the terms of reference as a \u2018living document\u2019. Make plans to review the document regularly over time with patient partners and the rest of the research team. It is important to assess what\u2019s working, if there are any areas for improvement, and make updates as needed.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1752\" class=\"elementor-element elementor-element-31c1f3d e-flex e-con-boxed e-con e-child\" data-id=\"31c1f3d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-7003b3d elementor-widget__width-initial elementor-widget elementor-widget-fancybox\" data-id=\"7003b3d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"fancybox.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\r\n\r\n\r\n\r\n<div class=\"pt-fancy-box pt-style-1\">\r\n              <div class=\"pt-fancy-box-info\">\r\n                <h5 class=\"pt-fancy-box-title\"><\/h5>                                <p class=\"pt-fancybox-description\"><p><strong>Template of a Terms of Reference for Collaboration<\/strong><\/p>                <\/p>\r\n                <div class=\"pt-btn-container\">\r\n                    <a class=\"pt-button pt-button-link\" href=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2026\/04\/LabPartners-Terms-of-Reference-Template-1.docx\" target=\"_blank\">\r\n                      <div class=\"pt-button-block\">\r\n                      <span class=\"pt-button-text\">Download Here<\/span>\r\n                        <i class=\"ion ion-plus-round\"><\/i>\r\n                      <\/div>\r\n                    <\/a>\r\n                <\/div>\r\n                  \r\n        <\/div>\r\n<\/div>\r\n\r\n\r\n\r\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c78087 elementor-widget__width-initial elementor-widget elementor-widget-fancybox\" data-id=\"7c78087\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"fancybox.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\r\n\r\n\r\n\r\n<div class=\"pt-fancy-box pt-style-1\">\r\n              <div class=\"pt-fancy-box-info\">\r\n                <h5 class=\"pt-fancy-box-title\"><\/h5>                                <p class=\"pt-fancybox-description\"><p><strong>Example Terms of Reference<\/strong><br \/>\u00a0<\/p>                <\/p>\r\n                <div class=\"pt-btn-container\">\r\n                    <a class=\"pt-button pt-button-link\" href=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2026\/04\/LabPartners-Terms-of-Reference-Example-1.docx\" target=\"_blank\">\r\n                      <div class=\"pt-button-block\">\r\n                      <span class=\"pt-button-text\">Download Here<\/span>\r\n                        <i class=\"ion ion-plus-round\"><\/i>\r\n                      <\/div>\r\n                    <\/a>\r\n                <\/div>\r\n                  \r\n        <\/div>\r\n<\/div>\r\n\r\n\r\n\r\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1753\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"4\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1753\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> <h2 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"line-height: 1;font-size: 26px;color:#54595F;text-align: left\">Team Environment\u200b<\/h2> <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><i aria-hidden=\"true\" class=\"ion ion-arrow-up-b\"><\/i><\/span>\n\t\t\t<span class='e-closed'><i aria-hidden=\"true\" class=\"ion ion-arrow-down-b\"><\/i><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1753\" class=\"elementor-element elementor-element-a85b6d4 e-flex e-con-boxed e-con e-child\" data-id=\"a85b6d4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b0f918c elementor-widget__width-initial elementor-absolute elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"b0f918c\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<i aria-hidden=\"true\" class=\"ion ion-ios-people\"><\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-717d62d elementor-widget elementor-widget-text-editor\" data-id=\"717d62d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>\u00a0<\/p><p class=\"p1\" style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span class=\"s1\">In preclinical laboratory research it is especially important to create a supportive environment where patient partners feel comfortable to contribute their ideas, and space for them to do so. A few key suggestions include:<\/span><\/p><ul class=\"ul1\" style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><li class=\"li2\"><span class=\"s1\">Ensuring there is an opportunity to introduce patient partners to all members of the research team.<\/span><\/li><li class=\"li2\"><span class=\"s1\">To create an even playing field, drop titles (I.e. use first names instead of \u2018Dr.\u2019)<\/span><\/li><li class=\"li2\"><span class=\"s1\">Add an icebreaker question or activity at the beginning of initial meetings to help team members get to know each other, and feel more comfortable to share their ideas. (Ex. If you could travel anywhere in the world, where would you go?)<\/span><\/li><li class=\"li2\"><span class=\"s1\">Include time on meeting agendas for discussion and encourage everyone to ask questions if they are unsure of a term or concept.<\/span><\/li><li class=\"li2\"><span class=\"s1\">Offer one-on-one meetings if someone would like to learn more about a certain concept or topic, or if they are unable to attend a meeting.<\/span><\/li><li class=\"li2\"><span class=\"s1\">Use polling tools to help schedule meetings at dates and times that work for everyone.<\/span><\/li><li class=\"li2\"><span class=\"s1\">Emphasize that this is a new area for patient engagement and that we are still learning what works best; encourage feedback and suggestions!<\/span><\/li><li class=\"li2\"><span class=\"s1\">As with any collaboration it is important to maintain communication and provide updates throughout the project to ensure everyone is on the same page.<\/span><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1754\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"5\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1754\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> <h2 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"line-height: 1;font-size: 26px;color:#54595F;text-align: left\">Support and Recognition<\/h2> <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><i aria-hidden=\"true\" class=\"ion ion-arrow-up-b\"><\/i><\/span>\n\t\t\t<span class='e-closed'><i aria-hidden=\"true\" class=\"ion ion-arrow-down-b\"><\/i><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1754\" class=\"elementor-element elementor-element-72bb0b6 e-con-full e-flex e-con e-child\" data-id=\"72bb0b6\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9d65113 e-n-tabs-mobile elementor-widget elementor-widget-n-tabs\" data-id=\"9d65113\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;horizontal_scroll&quot;:&quot;disable&quot;}\" data-widget_type=\"nested-tabs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"e-n-tabs\" data-widget-number=\"165040403\" aria-label=\"Tabs. Open items with Enter or Space, close with Escape and navigate using the Arrow keys.\">\n\t\t\t<div class=\"e-n-tabs-heading\" role=\"tablist\">\n\t\t\t\t\t<button id=\"e-n-tab-title-1650404031\" data-tab-title-id=\"e-n-tab-title-1650404031\" class=\"e-n-tab-title\" aria-selected=\"true\" data-tab-index=\"1\" role=\"tab\" tabindex=\"0\" aria-controls=\"e-n-tab-content-1650404031\" style=\"--n-tabs-title-order: 1;\">\n\t\t\t\t\t<span class=\"e-n-tab-icon\">\n\t\t\t<i aria-hidden=\"true\" class=\"ion ion-ios-contact\"><\/i>\t\t\t<i aria-hidden=\"true\" class=\"ion ion-ios-contact\"><\/i>\t\t<\/span>\n\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tKey Contact\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t<button id=\"e-n-tab-title-1650404032\" data-tab-title-id=\"e-n-tab-title-1650404032\" class=\"e-n-tab-title\" aria-selected=\"false\" data-tab-index=\"2\" role=\"tab\" tabindex=\"-1\" aria-controls=\"e-n-tab-content-1650404032\" style=\"--n-tabs-title-order: 2;\">\n\t\t\t\t\t<span class=\"e-n-tab-icon\">\n\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-money-bill\" viewBox=\"0 0 640 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M608 64H32C14.33 64 0 78.33 0 96v320c0 17.67 14.33 32 32 32h576c17.67 0 32-14.33 32-32V96c0-17.67-14.33-32-32-32zM48 400v-64c35.35 0 64 28.65 64 64H48zm0-224v-64h64c0 35.35-28.65 64-64 64zm272 176c-44.19 0-80-42.99-80-96 0-53.02 35.82-96 80-96s80 42.98 80 96c0 53.03-35.83 96-80 96zm272 48h-64c0-35.35 28.65-64 64-64v64zm0-224c-35.35 0-64-28.65-64-64h64v64z\"><\/path><\/svg>\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-money-bill\" viewBox=\"0 0 640 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M608 64H32C14.33 64 0 78.33 0 96v320c0 17.67 14.33 32 32 32h576c17.67 0 32-14.33 32-32V96c0-17.67-14.33-32-32-32zM48 400v-64c35.35 0 64 28.65 64 64H48zm0-224v-64h64c0 35.35-28.65 64-64 64zm272 176c-44.19 0-80-42.99-80-96 0-53.02 35.82-96 80-96s80 42.98 80 96c0 53.03-35.83 96-80 96zm272 48h-64c0-35.35 28.65-64 64-64v64zm0-224c-35.35 0-64-28.65-64-64h64v64z\"><\/path><\/svg>\t\t<\/span>\n\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tReimbursement\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t<button id=\"e-n-tab-title-1650404033\" data-tab-title-id=\"e-n-tab-title-1650404033\" class=\"e-n-tab-title\" aria-selected=\"false\" data-tab-index=\"3\" role=\"tab\" tabindex=\"-1\" aria-controls=\"e-n-tab-content-1650404033\" style=\"--n-tabs-title-order: 3;\">\n\t\t\t\t\t<span class=\"e-n-tab-icon\">\n\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-money-check-alt\" viewBox=\"0 0 640 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M608 32H32C14.33 32 0 46.33 0 64v384c0 17.67 14.33 32 32 32h576c17.67 0 32-14.33 32-32V64c0-17.67-14.33-32-32-32zM176 327.88V344c0 4.42-3.58 8-8 8h-16c-4.42 0-8-3.58-8-8v-16.29c-11.29-.58-22.27-4.52-31.37-11.35-3.9-2.93-4.1-8.77-.57-12.14l11.75-11.21c2.77-2.64 6.89-2.76 10.13-.73 3.87 2.42 8.26 3.72 12.82 3.72h28.11c6.5 0 11.8-5.92 11.8-13.19 0-5.95-3.61-11.19-8.77-12.73l-45-13.5c-18.59-5.58-31.58-23.42-31.58-43.39 0-24.52 19.05-44.44 42.67-45.07V152c0-4.42 3.58-8 8-8h16c4.42 0 8 3.58 8 8v16.29c11.29.58 22.27 4.51 31.37 11.35 3.9 2.93 4.1 8.77.57 12.14l-11.75 11.21c-2.77 2.64-6.89 2.76-10.13.73-3.87-2.43-8.26-3.72-12.82-3.72h-28.11c-6.5 0-11.8 5.92-11.8 13.19 0 5.95 3.61 11.19 8.77 12.73l45 13.5c18.59 5.58 31.58 23.42 31.58 43.39 0 24.53-19.05 44.44-42.67 45.07zM416 312c0 4.42-3.58 8-8 8H296c-4.42 0-8-3.58-8-8v-16c0-4.42 3.58-8 8-8h112c4.42 0 8 3.58 8 8v16zm160 0c0 4.42-3.58 8-8 8h-80c-4.42 0-8-3.58-8-8v-16c0-4.42 3.58-8 8-8h80c4.42 0 8 3.58 8 8v16zm0-96c0 4.42-3.58 8-8 8H296c-4.42 0-8-3.58-8-8v-16c0-4.42 3.58-8 8-8h272c4.42 0 8 3.58 8 8v16z\"><\/path><\/svg>\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-money-check-alt\" viewBox=\"0 0 640 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M608 32H32C14.33 32 0 46.33 0 64v384c0 17.67 14.33 32 32 32h576c17.67 0 32-14.33 32-32V64c0-17.67-14.33-32-32-32zM176 327.88V344c0 4.42-3.58 8-8 8h-16c-4.42 0-8-3.58-8-8v-16.29c-11.29-.58-22.27-4.52-31.37-11.35-3.9-2.93-4.1-8.77-.57-12.14l11.75-11.21c2.77-2.64 6.89-2.76 10.13-.73 3.87 2.42 8.26 3.72 12.82 3.72h28.11c6.5 0 11.8-5.92 11.8-13.19 0-5.95-3.61-11.19-8.77-12.73l-45-13.5c-18.59-5.58-31.58-23.42-31.58-43.39 0-24.52 19.05-44.44 42.67-45.07V152c0-4.42 3.58-8 8-8h16c4.42 0 8 3.58 8 8v16.29c11.29.58 22.27 4.51 31.37 11.35 3.9 2.93 4.1 8.77.57 12.14l-11.75 11.21c-2.77 2.64-6.89 2.76-10.13.73-3.87-2.43-8.26-3.72-12.82-3.72h-28.11c-6.5 0-11.8 5.92-11.8 13.19 0 5.95 3.61 11.19 8.77 12.73l45 13.5c18.59 5.58 31.58 23.42 31.58 43.39 0 24.53-19.05 44.44-42.67 45.07zM416 312c0 4.42-3.58 8-8 8H296c-4.42 0-8-3.58-8-8v-16c0-4.42 3.58-8 8-8h112c4.42 0 8 3.58 8 8v16zm160 0c0 4.42-3.58 8-8 8h-80c-4.42 0-8-3.58-8-8v-16c0-4.42 3.58-8 8-8h80c4.42 0 8 3.58 8 8v16zm0-96c0 4.42-3.58 8-8 8H296c-4.42 0-8-3.58-8-8v-16c0-4.42 3.58-8 8-8h272c4.42 0 8 3.58 8 8v16z\"><\/path><\/svg>\t\t<\/span>\n\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tHonorarium\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t<button id=\"e-n-tab-title-1650404034\" data-tab-title-id=\"e-n-tab-title-1650404034\" class=\"e-n-tab-title\" aria-selected=\"false\" data-tab-index=\"4\" role=\"tab\" tabindex=\"-1\" aria-controls=\"e-n-tab-content-1650404034\" style=\"--n-tabs-title-order: 4;\">\n\t\t\t\t\t<span class=\"e-n-tab-icon\">\n\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-pen\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M290.74 93.24l128.02 128.02-277.99 277.99-114.14 12.6C11.35 513.54-1.56 500.62.14 485.34l12.7-114.22 277.9-277.88zm207.2-19.06l-60.11-60.11c-18.75-18.75-49.16-18.75-67.91 0l-56.55 56.55 128.02 128.02 56.55-56.55c18.75-18.76 18.75-49.16 0-67.91z\"><\/path><\/svg>\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-pen\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M290.74 93.24l128.02 128.02-277.99 277.99-114.14 12.6C11.35 513.54-1.56 500.62.14 485.34l12.7-114.22 277.9-277.88zm207.2-19.06l-60.11-60.11c-18.75-18.75-49.16-18.75-67.91 0l-56.55 56.55 128.02 128.02 56.55-56.55c18.75-18.76 18.75-49.16 0-67.91z\"><\/path><\/svg>\t\t<\/span>\n\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tCo-Authorship\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t<button id=\"e-n-tab-title-1650404035\" data-tab-title-id=\"e-n-tab-title-1650404035\" class=\"e-n-tab-title\" aria-selected=\"false\" data-tab-index=\"5\" role=\"tab\" tabindex=\"-1\" aria-controls=\"e-n-tab-content-1650404035\" style=\"--n-tabs-title-order: 5;\">\n\t\t\t\t\t\t<span class=\"e-n-tab-title-text\">\n\t\t\t\tOther\t\t\t<\/span>\n\t\t<\/button>\n\t\t\t\t\t<\/div>\n\t\t\t<div class=\"e-n-tabs-content\">\n\t\t\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1754 e-n-tab-title-1650404031\" id=\"e-n-tab-content-1650404031\" data-tab-index=\"1\" style=\"--n-tabs-title-order: 1;\" class=\"e-active elementor-element elementor-element-35d703b e-con-full e-flex e-con e-child\" data-id=\"35d703b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f50ec6b elementor-widget elementor-widget-text-editor\" data-id=\"f50ec6b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\" style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span style=\"font-weight: bold;\">\u00a0Key Contact:\u00a0<\/span><span data-contrast=\"auto\">It is helpful to have a key point of contact that can answer questions or have one-on-one meetings with patient partners to discuss recognition and compensation.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><ul style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><li data-leveltext=\"\uf0a7\" data-font=\"Wingdings\" data-listid=\"64\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:2160,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Wingdings&quot;,&quot;469769242&quot;:[9642],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0a7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"1\" data-aria-level=\"3\"><span data-contrast=\"auto\">It is the responsibility of the researchers to initiate conversations around compensation.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/li><li data-leveltext=\"\uf0a7\" data-font=\"Wingdings\" data-listid=\"64\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:2160,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Wingdings&quot;,&quot;469769242&quot;:[9642],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0a7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"3\"><span data-contrast=\"auto\">At the onboarding meeting, it\u2019s important to be transparent about what you can offer in terms of compensation and then schedule one-on-one discussions with each patient partner to ensure that their unique needs and preferences are met.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/li><li data-leveltext=\"\uf0b7\" data-font=\"Symbol\" data-listid=\"64\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:2880,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Symbol&quot;,&quot;469769242&quot;:[8226],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0b7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"6\" data-aria-level=\"4\"><span data-contrast=\"auto\">For example, discuss how patient partners want to be recognized, method of financial compensation (honoraria, gift cards, gift) and payment schedule.<\/span><\/li><\/ul><div><p><span class=\"s1\"><span style=\"font-weight: bold;\">Resources:<br \/><\/span><\/span><span class=\"s1\"><a href=\"https:\/\/sporevidencealliance.ca\/wp-content\/uploads\/2019\/08\/SPOR-EA_Patient-Partner-Appreciation-Policy-and-Procedure.pdf\" target=\"_blank\" rel=\"noopener\">&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019<\/a><br \/><\/span><a href=\"https:\/\/cihr-irsc.gc.ca\/e\/51466.html\">&#8211; Considerations When Paying Patient Partners in Research<\/a><\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1754 e-n-tab-title-1650404032\" id=\"e-n-tab-content-1650404032\" data-tab-index=\"2\" style=\"--n-tabs-title-order: 2;\" class=\" elementor-element elementor-element-fbd4047 e-con-full e-flex e-con e-child\" data-id=\"fbd4047\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ff3d03e elementor-widget elementor-widget-text-editor\" data-id=\"ff3d03e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\" style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span style=\"font-weight: bold;\">Reimbursement:\u00a0<\/span><span data-contrast=\"auto\">It\u2019s important to consider whether patient partners will face any costs associated with engagement (e.g. parking) and plan to reimburse them for these costs. Patient partners shouldn\u2019t pay out-of-pocket to be engaged in research.\u00a0<\/span><\/p><p><span class=\"s1\"><span style=\"font-weight: bold;\">Resources:<br \/><\/span><\/span><span class=\"s1\"><a href=\"https:\/\/sporevidencealliance.ca\/wp-content\/uploads\/2019\/08\/SPOR-EA_Patient-Partner-Appreciation-Policy-and-Procedure.pdf\" target=\"_blank\" rel=\"noopener\">&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019<\/a><br \/><\/span><a href=\"https:\/\/cihr-irsc.gc.ca\/e\/51466.html\">&#8211; Considerations When Paying Patient Partners in Research<\/a><\/p><p class=\"p1\" style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1754 e-n-tab-title-1650404033\" id=\"e-n-tab-content-1650404033\" data-tab-index=\"3\" style=\"--n-tabs-title-order: 3;\" class=\" elementor-element elementor-element-ac58b55 e-con-full e-flex e-con e-child\" data-id=\"ac58b55\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-8403b5a elementor-widget elementor-widget-text-editor\" data-id=\"8403b5a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span style=\"font-weight: bold;\">Honorarium:\u00a0<\/span><span data-contrast=\"auto\">In addition, we recommend offering honoraria (e.g., cheques) to recognize partner time and efforts.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><ul style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><li data-leveltext=\"\uf0a7\" data-font=\"Wingdings\" data-listid=\"64\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:2160,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Wingdings&quot;,&quot;469769242&quot;:[9642],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0a7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"3\" data-aria-level=\"3\"><span data-contrast=\"auto\">Accepting honoraria valued above a specific monetary amount (consult appropriate revenue agency for further details) is considered taxable income. Thus, accepting honoraria may have tax implications or jeopardize patient partner ability to accept governmental social security support.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/li><li data-leveltext=\"\uf0a7\" data-font=\"Wingdings\" data-listid=\"64\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:2160,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Wingdings&quot;,&quot;469769242&quot;:[9642],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0a7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"4\" data-aria-level=\"3\"><span data-contrast=\"auto\">In order to process honoraria, patient partner addresses and Social Insurance Numbers are often required. It\u2019s important to make this clear to patient partners in the event that they don\u2019t feel comfortable sharing this information.\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/li><li data-leveltext=\"\uf0a7\" data-font=\"Wingdings\" data-listid=\"64\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:2160,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Wingdings&quot;,&quot;469769242&quot;:[9642],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0a7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"5\" data-aria-level=\"3\"><span data-contrast=\"auto\">If patient partners express concerns about accepting financial compensation, offering gift cards to retailers of their choosing may be a reasonable alternative.<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/li><li data-leveltext=\"\uf0a7\" data-font=\"Wingdings\" data-listid=\"64\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:2160,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Wingdings&quot;,&quot;469769242&quot;:[9642],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0a7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"6\" data-aria-level=\"3\"><span data-contrast=\"auto\">See guidelines below for suggested rates, amounts and considerations<\/span><\/li><\/ul><p class=\"p1\" style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span class=\"s1\"><span style=\"font-weight: bold;\">Resources:<br \/><\/span><a href=\"https:\/\/sporevidencealliance.ca\/wp-content\/uploads\/2019\/08\/SPOR-EA_Patient-Partner-Appreciation-Policy-and-Procedure.pdf\" target=\"_blank\" rel=\"noopener\">&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019<\/a><br \/><a href=\"https:\/\/cihr-irsc.gc.ca\/e\/51466.html\">&#8211; Considerations When Paying Patient Partners in Research<\/a><\/span><\/p><p class=\"p1\" style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1754 e-n-tab-title-1650404034\" id=\"e-n-tab-content-1650404034\" data-tab-index=\"4\" style=\"--n-tabs-title-order: 4;\" class=\" elementor-element elementor-element-6ab0848 e-flex e-con-boxed e-con e-child\" data-id=\"6ab0848\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e9cdf60 elementor-widget elementor-widget-text-editor\" data-id=\"e9cdf60\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span style=\"font-weight: bold;\">Co-Authorship:\u00a0<\/span><span data-contrast=\"auto\">Patient partners may also be offered co-authorship or acknowledgement (depending on their contributions). It is important to clarify that if patient partners are listed as coauthors, then their names in association with the published manuscript will be made public.\u00a0\u00a0<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/p><ul style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><li data-leveltext=\"\uf0a7\" data-font=\"Wingdings\" data-listid=\"64\" data-list-defn-props=\"{&quot;335552541&quot;:1,&quot;335559684&quot;:-2,&quot;335559685&quot;:2160,&quot;335559991&quot;:360,&quot;469769226&quot;:&quot;Wingdings&quot;,&quot;469769242&quot;:[9642],&quot;469777803&quot;:&quot;left&quot;,&quot;469777804&quot;:&quot;\uf0a7&quot;,&quot;469777815&quot;:&quot;hybridMultilevel&quot;}\" aria-setsize=\"-1\" data-aria-posinset=\"7\" data-aria-level=\"3\"><span data-contrast=\"auto\">For example, patient partners may refuse co-authorship because of privacy concerns or if they have experience of a health condition that is stigmatized.\u00a0<\/span><\/li><\/ul><div style=\"text-align: left;\"><p class=\"p1\" style=\"color: #7a7a7a; font-size: 18px;\"><span class=\"s1\"><span style=\"font-weight: bold;\">Resources:<br \/><\/span><a href=\"https:\/\/sporevidencealliance.ca\/wp-content\/uploads\/2019\/08\/SPOR-EA_Patient-Partner-Appreciation-Policy-and-Procedure.pdf\" target=\"_blank\" rel=\"noopener\">&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019<\/a><br \/><a href=\"https:\/\/cihr-irsc.gc.ca\/e\/51466.html\">&#8211; Considerations When Paying Patient Partners in Research<\/a><\/span><span class=\"s1\"><span style=\"font-weight: bold;\"><br \/><\/span><\/span><\/p><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div role=\"region tabpanel\" aria-labelledby=\"e-n-accordion-item-1754 e-n-tab-title-1650404035\" id=\"e-n-tab-content-1650404035\" data-tab-index=\"5\" style=\"--n-tabs-title-order: 5;\" class=\" elementor-element elementor-element-94682e2 e-flex e-con-boxed e-con e-child\" data-id=\"94682e2\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b09efb9 elementor-widget elementor-widget-text-editor\" data-id=\"b09efb9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><span style=\"font-weight: bold;\">Other:<\/span><span data-contrast=\"auto\">\u00a0D<\/span><span data-contrast=\"auto\">iscuss with patient partners to identify any other supports they may need to be involved (e.g. training, printing of documents).<\/span><span data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:257}\">\u00a0<\/span><\/p><p><span class=\"s1\"><span style=\"font-weight: bold;\">Resources:<br \/><\/span><\/span><span class=\"s1\"><a href=\"https:\/\/sporevidencealliance.ca\/wp-content\/uploads\/2019\/08\/SPOR-EA_Patient-Partner-Appreciation-Policy-and-Procedure.pdf\" target=\"_blank\" rel=\"noopener\">&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019<\/a><br \/><\/span><a href=\"https:\/\/cihr-irsc.gc.ca\/e\/51466.html\">&#8211; Considerations When Paying Patient Partners in Research<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1755\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"6\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1755\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> <h2 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"line-height: 1;font-size: 26px;color:#54595F;text-align: left\">Evaluation &amp; Continuous Improvement\u200b\u200b<\/h2> <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><i aria-hidden=\"true\" class=\"ion ion-arrow-up-b\"><\/i><\/span>\n\t\t\t<span class='e-closed'><i aria-hidden=\"true\" class=\"ion ion-arrow-down-b\"><\/i><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1755\" class=\"elementor-element elementor-element-3985203 e-flex e-con-boxed e-con e-child\" data-id=\"3985203\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3694097 elementor-widget elementor-widget-text-editor\" data-id=\"3694097\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">As with any collaborative partnership, it is important to check-in and reflect on what is working well, and where there may be areas for improvement. There are many <a href=\"https:\/\/ceppp.ca\/en\/evaluation-toolkit\/\">existing tools<\/a> available for the assessment of your engagement approach . <a href=\"https:\/\/ppe.mcmaster.ca\/resources\/public-and-patient-engagement-evaluation-tool\/\">The Public and Patient Engagement Evaluation Tool Version 2.0<\/a> in particular includes surveys for both patient partners and researchers to obtain input and feedback from all team members.<\/p><p style=\"color: #7a7a7a; font-size: 18px; text-align: start;\">When working with patient partners, it is also very important to actively avoid <a href=\"https:\/\/bmchealthservres.biomedcentral.com\/articles\/10.1186\/1472-6963-14-89\">tokenism<\/a> (\u201ca false appearance of inclusiveness\u201d). Though there is no one way to do this, important steps include:<\/p><ul style=\"color: #7a7a7a; font-size: 18px; text-align: start;\"><li>Reflecting from the very beginning on why you would like to work with patients on your preclinical laboratory research.<\/li><li>Having open and honest conversations with patient partners; this is a new area for patient engagement and we are still learning how to work together. Emphasize that you are open to feedback and suggestions.<\/li><li>Ensure you keep patient partners updated on how things are progressing (even if it is to let them know that things are taking longer than anticipated).<\/li><li>Don\u2019t make assumptions and ensure you ask patient partners for their input and preference throughout the entire project (e.g. attendance at meetings, providing input, if they would like to be acknowledged for their work in presentations or papers, etc.).<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-233a6e5 elementor-widget__width-initial elementor-widget elementor-widget-fancybox\" data-id=\"233a6e5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"fancybox.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\r\n\r\n\r\n\r\n<div class=\"pt-fancy-box pt-style-1\">\r\n              <div class=\"pt-fancy-box-info\">\r\n                <h5 class=\"pt-fancy-box-title\">Tokenism : Seeing it. Fixing it. Perspectives from IMHA Patient Partners<\/h5>                <\/p>\r\n                <div class=\"pt-btn-container\">\r\n                    <a class=\"pt-button pt-button-link\" href=\"https:\/\/blogs.ubc.ca\/imhablog\/2021\/10\/13\/tokenism-seeing-it-fixing-it-perspectives-from-patient-partners\/ \" target=\"_blank\">\r\n                      <div class=\"pt-button-block\">\r\n                      <span class=\"pt-button-text\">Read More<\/span>\r\n                        <i class=\"ion ion-plus-round\"><\/i>\r\n                      <\/div>\r\n                    <\/a>\r\n                <\/div>\r\n                  \r\n        <\/div>\r\n<\/div>\r\n\r\n\r\n\r\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t<details id=\"e-n-accordion-item-1756\" class=\"e-n-accordion-item\" >\n\t\t\t\t<summary class=\"e-n-accordion-item-title\" data-accordion-index=\"7\" tabindex=\"-1\" aria-expanded=\"false\" aria-controls=\"e-n-accordion-item-1756\" >\n\t\t\t\t\t<span class='e-n-accordion-item-title-header'><div class=\"e-n-accordion-item-title-text\"> <h2 data-elementor-setting-key=\"title\" data-pen-placeholder=\"Type Here...\" style=\"line-height: 1;font-size: 26px;color:#54595F;text-align: left\">Budgeting<\/h2> <\/div><\/span>\n\t\t\t\t\t\t\t<span class='e-n-accordion-item-title-icon'>\n\t\t\t<span class='e-opened' ><i aria-hidden=\"true\" class=\"ion ion-arrow-up-b\"><\/i><\/span>\n\t\t\t<span class='e-closed'><i aria-hidden=\"true\" class=\"ion ion-arrow-down-b\"><\/i><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t<div role=\"region\" aria-labelledby=\"e-n-accordion-item-1756\" class=\"elementor-element elementor-element-781488d e-flex e-con-boxed e-con e-child\" data-id=\"781488d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-c669fd3 elementor-widget elementor-widget-text-editor\" data-id=\"c669fd3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>When initially deciding to partner with patients in preclinical laboratory research, it is important to consider any costs patient partners may face so that they can be reimbursed (e.g. parking), as well as any supports that you will offer (e.g. compensation, training), so that these can be included within your budget. A formal budget justification, citing relevant guidelines, should also be prepared for grant applications. The Canadian Institutes of Health Research and associated SPOR units often provide funding opportunities for patient engagement.<\/p><p>See below to learn more about budgeting for patient engagement.<\/p><ul><li><a href=\"https:\/\/www.invo.org.uk\/resource-centre\/payment-and-recognition-for-public-involvement\/involvement-cost-calculator\/\"><b>A Guide to Budgeting for Patient Partner Engagement from a Government Organization.<\/b><\/a><\/li><li><a href=\"https:\/\/cihr-irsc.gc.ca\/e\/51466.html\"><span style=\"font-weight: 600;\">CIHR\u2019s Considerations When Paying Patient Partners in Research.<\/span><\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<script type=\"application\/ld+json\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@type\":\"FAQPage\",\"mainEntity\":[{\"@type\":\"Question\",\"name\":\"Circulating An Advert And Connecting With Patient Partners\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"When first getting started we recommend reaching out for help! There are a number of organizations and groups with expertise in engagement who can provide guidance, resources and help to connect you with patients interested in engaging in research. When starting a new engagement initiative we often reach out to organizations that we have a working relationship with to help us share an advertisement to identify interested patient partners.We recommend checking to see if your local institution has a centre or individuals with expertise. For instance \\u2013 within the Ottawa Hospital there is an Office for Patient Engagement in Research Activities (OPERA) which provides consultations and can help you to connect with patient partners. Each province also has a Strategy for Patient Oriented Research (SPOR) SUPPORT Unit \\u2013 which can provide resources and may have available funding opportunities. Another idea is to make connections with relevant patient organizations.To develop an advertisement to identify interested patient partners, it is important to reflect on your goals for patient engagement, and to provide key details for consideration (I.e., anticipated time commitment, compensation, supports). See below for an example and click the button for more details.\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\r\\n\\r\\n  \\r\\n        \\r\\n          \\r\\n          Example\\r\\n            \\r\\n          \\r\\n        \\r\\n  \\r\\n\\r\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\r\\n\\r\\n  \\r\\n        \\r\\n          \\r\\n          TEMPLATE\\r\\n            \\r\\n          \\r\\n        \\r\\n  \\r\\n\\r\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\r\\n\\r\\n  \\r\\n        \\r\\n          \\r\\n          HELPFUL TIPS\"}},{\"@type\":\"Question\",\"name\":\"Onboarding\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"Once you have identified interested patient partners, it\\u2019s then important to hold an onboarding meeting (or meetings). During this time, you can further discuss each team members\\u2019 expectations for the partnership, patient partner interests, and time commitment\\\/availability. At this or subsequent meetings you may also further describe and discuss your research, and begin to discuss ideas for working together (see our\\u00a0Framework page\\u00a0for ideas).Key Considerations for Onboarding Meetings:\\u00a0\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\tAccessible Vocabulary &amp; Materials\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\tInterests &amp; Availability\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\tSupportive Environment\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\tMaintain Communication\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\tThroughout the project, it is essential that team members use a shared vocabulary. Try to avoid the use of technical terms and acronyms, or take the time to ensure these terms are well-explained. It is also important to develop accessible materials (e.g., slides, infographics, non-technical summaries) to help explain the research project and concepts.\\u00a0\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\tDiscuss patient partner interests and availability and co-develop activities that are tailored based on patient partner preferences.\\u00a0\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\tAim to create a supportive environment where partners feel comfortable to contribute their ideas, take part in discussions and ask questions.\\u00a0\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\tAs with any collaboration, it is very important to maintain communication throughout the project. Patient partners should be kept up to date on project progress (as well as delays in the project).\\u00a0\"}},{\"@type\":\"Question\",\"name\":\"Terms Of Reference\\u200b\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"After initial onboarding, patient partners still interested in joining should then work together with the team to co-create a terms of reference. This document is meant to outline a shared set of expectations to ensure everyone is \\u2018on the same page\\u2019. The terms of reference also provides an opportunity to discuss and brainstorm goals for patient engagement and how you would like to work together. Though it is important for the research team to reflect on their goals in advance and to come prepared with ideas for working together, it is also important to discuss these with patient partners. Make time to hear their ideas and co-develop a plan together.The terms of reference can be drafted by the team from initial onboarding discussions, then shared with patient partners for input and feedback.Once the terms of reference draft has been shared, we find it is helpful to host a meeting to discuss the contents to obtain patient partner input. Once feedback has been incorporated, this version should be shared with all team members.Treat the terms of reference as a \\u2018living document\\u2019. Make plans to review the document regularly over time with patient partners and the rest of the research team. It is important to assess what\\u2019s working, if there are any areas for improvement, and make updates as needed.\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\r\\n\\r\\n\\r\\n\\r\\n\\r\\n              \\r\\n                                                Template of a Terms of Reference for Collaboration                \\r\\n                \\r\\n                    \\r\\n                      \\r\\n                      Download Here\\r\\n                        \\r\\n                      \\r\\n                    \\r\\n                \\r\\n                  \\r\\n        \\r\\n\\r\\n\\r\\n\\r\\n\\r\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\r\\n\\r\\n\\r\\n\\r\\n\\r\\n              \\r\\n                                                Example Terms of Reference\\u00a0                \\r\\n                \\r\\n                    \\r\\n                      \\r\\n                      Download Here\"}},{\"@type\":\"Question\",\"name\":\"Team Environment\\u200b\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"\\u00a0In preclinical laboratory research it is especially important to create a supportive environment where patient partners feel comfortable to contribute their ideas, and space for them to do so. A few key suggestions include:Ensuring there is an opportunity to introduce patient partners to all members of the research team.To create an even playing field, drop titles (I.e. use first names instead of \\u2018Dr.\\u2019)Add an icebreaker question or activity at the beginning of initial meetings to help team members get to know each other, and feel more comfortable to share their ideas. (Ex. If you could travel anywhere in the world, where would you go?)Include time on meeting agendas for discussion and encourage everyone to ask questions if they are unsure of a term or concept.Offer one-on-one meetings if someone would like to learn more about a certain concept or topic, or if they are unable to attend a meeting.Use polling tools to help schedule meetings at dates and times that work for everyone.Emphasize that this is a new area for patient engagement and that we are still learning what works best; encourage feedback and suggestions!As with any collaboration it is important to maintain communication and provide updates throughout the project to ensure everyone is on the same page.\"}},{\"@type\":\"Question\",\"name\":\"Support and Recognition\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"Key Contact\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\tReimbursement\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\tHonorarium\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\tCo-Authorship\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\tOther\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\t\\u00a0Key Contact:\\u00a0It is helpful to have a key point of contact that can answer questions or have one-on-one meetings with patient partners to discuss recognition and compensation.\\u00a0It is the responsibility of the researchers to initiate conversations around compensation.\\u00a0\\u00a0At the onboarding meeting, it\\u2019s important to be transparent about what you can offer in terms of compensation and then schedule one-on-one discussions with each patient partner to ensure that their unique needs and preferences are met.\\u00a0\\u00a0For example, discuss how patient partners want to be recognized, method of financial compensation (honoraria, gift cards, gift) and payment schedule.Resources:&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019&#8211; Considerations When Paying Patient Partners in Research\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\tReimbursement:\\u00a0It\\u2019s important to consider whether patient partners will face any costs associated with engagement (e.g. parking) and plan to reimburse them for these costs. Patient partners shouldn\\u2019t pay out-of-pocket to be engaged in research.\\u00a0Resources:&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019&#8211; Considerations When Paying Patient Partners in Research\\u00a0\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\tHonorarium:\\u00a0In addition, we recommend offering honoraria (e.g., cheques) to recognize partner time and efforts.\\u00a0\\u00a0Accepting honoraria valued above a specific monetary amount (consult appropriate revenue agency for further details) is considered taxable income. Thus, accepting honoraria may have tax implications or jeopardize patient partner ability to accept governmental social security support.\\u00a0In order to process honoraria, patient partner addresses and Social Insurance Numbers are often required. It\\u2019s important to make this clear to patient partners in the event that they don\\u2019t feel comfortable sharing this information.\\u00a0\\u00a0If patient partners express concerns about accepting financial compensation, offering gift cards to retailers of their choosing may be a reasonable alternative.\\u00a0See guidelines below for suggested rates, amounts and considerationsResources:&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019&#8211; Considerations When Paying Patient Partners in Research\\u00a0\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\tCo-Authorship:\\u00a0Patient partners may also be offered co-authorship or acknowledgement (depending on their contributions). It is important to clarify that if patient partners are listed as coauthors, then their names in association with the published manuscript will be made public.\\u00a0\\u00a0\\u00a0For example, patient partners may refuse co-authorship because of privacy concerns or if they have experience of a health condition that is stigmatized.\\u00a0Resources:&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019&#8211; Considerations When Paying Patient Partners in Research\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\n\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\t\\t\\t\\tOther:\\u00a0Discuss with patient partners to identify any other supports they may need to be involved (e.g. training, printing of documents).\\u00a0Resources:&#8211; SPOR Evidence Alliance. Patient partner appreciation policy and protocol. SPOR. 2019&#8211; Considerations When Paying Patient Partners in Research\"}},{\"@type\":\"Question\",\"name\":\"Evaluation & Continuous Improvement\\u200b\\u200b\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"As with any collaborative partnership, it is important to check-in and reflect on what is working well, and where there may be areas for improvement. There are many existing tools available for the assessment of your engagement approach . The Public and Patient Engagement Evaluation Tool Version 2.0 in particular includes surveys for both patient partners and researchers to obtain input and feedback from all team members.When working with patient partners, it is also very important to actively avoid tokenism (\\u201ca false appearance of inclusiveness\\u201d). Though there is no one way to do this, important steps include:Reflecting from the very beginning on why you would like to work with patients on your preclinical laboratory research.Having open and honest conversations with patient partners; this is a new area for patient engagement and we are still learning how to work together. Emphasize that you are open to feedback and suggestions.Ensure you keep patient partners updated on how things are progressing (even if it is to let them know that things are taking longer than anticipated).Don\\u2019t make assumptions and ensure you ask patient partners for their input and preference throughout the entire project (e.g. attendance at meetings, providing input, if they would like to be acknowledged for their work in presentations or papers, etc.).\\t\\t\\t\\t\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\n\\t\\t\\t\\t\\t\\r\\n\\r\\n\\r\\n\\r\\n\\r\\n              \\r\\n                Tokenism : Seeing it. Fixing it. Perspectives from IMHA Patient Partners                \\r\\n                \\r\\n                    \\r\\n                      \\r\\n                      Read More\"}},{\"@type\":\"Question\",\"name\":\"Budgeting\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"When initially deciding to partner with patients in preclinical laboratory research, it is important to consider any costs patient partners may face so that they can be reimbursed (e.g. parking), as well as any supports that you will offer (e.g. compensation, training), so that these can be included within your budget. A formal budget justification, citing relevant guidelines, should also be prepared for grant applications. The Canadian Institutes of Health Research and associated SPOR units often provide funding opportunities for patient engagement.See below to learn more about budgeting for patient engagement.A Guide to Budgeting for Patient Partner Engagement from a Government Organization.CIHR\\u2019s Considerations When Paying Patient Partners in Research.\"}}]}<\/script>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-82d5233 elementor-hidden-tablet elementor-hidden-mobile\" data-id=\"82d5233\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-section elementor-top-section elementor-element elementor-element-03f42cf elementor-section-full_width elementor-section-stretched elementor-section-height-default elementor-section-height-default\" data-id=\"03f42cf\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-00e7ab9 elementor-hidden-tablet elementor-hidden-mobile\" data-id=\"00e7ab9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-0cb9981\" data-id=\"0cb9981\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e80f89b elementor-widget elementor-widget-heading\" data-id=\"e80f89b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">ADDITIONAL RESOURCES<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-e0c6dbf e-con-full e-flex e-con e-parent\" data-id=\"e0c6dbf\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-ec34b9a elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"ec34b9a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>How can Patient Partners be engaged in Laboratory Research?<\/p><ul><li><a class=\"Hyperlink SCXW17012157 BCX0\" href=\"https:\/\/vimeo.com\/850919692\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW17012157 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW17012157 BCX0\" data-ccp-charstyle=\"Hyperlink\">The Blueprint Research Team\u2019s Approach to Patient Engagement<\/span><\/span><\/a><span class=\"EOP SCXW17012157 BCX0\" data-ccp-props=\"{&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20}\">\u00a0<\/span><\/li><li><a class=\"Hyperlink SCXW64248941 BCX0\" href=\"https:\/\/labpartners.ca\/wp-content\/uploads\/2023\/12\/PEBS_Preclinical-PE-PolicyBrief_v.1.0__20231020-2.pdf\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW64248941 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW64248941 BCX0\" data-ccp-charstyle=\"Hyperlink\">Engaging Patients as Partners in Preclinical Laboratory Research: A policy brief offering a clear overview of preclinical patient engagement, coupled with suggestions for decision-makers implementing this practice<\/span><\/span><\/a><\/li><li><span class=\"TextRun SCXW40766461 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW40766461 BCX0\">\u00a0<\/span><\/span><a class=\"Hyperlink SCXW40766461 BCX0\" href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/34280783\/\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW40766461 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW40766461 BCX0\" data-ccp-charstyle=\"Hyperlink\">Patient engagement in preclinical laboratory research:A scoping review<\/span><\/span><\/a><span class=\"EOP SCXW40766461 BCX0\" data-ccp-props=\"{&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20}\">\u00a0<\/span><\/li><li><a class=\"Hyperlink SCXW202950492 BCX0\" href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/36217557\/\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW202950492 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW202950492 BCX0\" data-ccp-charstyle=\"Hyperlink\">Applying Patient and Public Involvement in preclinical research: A co-created scoping review<\/span><\/span><\/a><\/li><li><span class=\"TextRun SCXW112872827 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW112872827 BCX0\">\u00a0<\/span><\/span><a class=\"Hyperlink SCXW112872827 BCX0\" href=\"https:\/\/ossu.ca\/for-researchers\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW112872827 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW112872827 BCX0\" data-ccp-charstyle=\"Hyperlink\">Educational Support for Researchers Looking to Engage Patients in Research<\/span><\/span><\/a><\/li><\/ul><p>Researching Animal Research: What humanities and social sciences can contribute to laboratory animal science and welfare<\/p><ul><li><a class=\"Hyperlink SCXW2751906 BCX0\" href=\"https:\/\/www.manchesterhive.com\/display\/9781526165770\/9781526165770.00019.xml\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW2751906 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW2751906 BCX0\" data-ccp-charstyle=\"Hyperlink\">Chapter 10: \u2018Field folk\u2019: Citizen scientists and the Animals (Scientific Procedures) Act\u00a0<\/span><\/span><\/a><span class=\"TextRun SCXW2751906 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW2751906 BCX0\">\u00a0<\/span><\/span><span class=\"EOP SCXW2751906 BCX0\" data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/li><li><a class=\"Hyperlink SCXW184553475 BCX0\" href=\"https:\/\/www.manchesterhive.com\/display\/9781526165770\/9781526165770.00020.xml\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW184553475 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW184553475 BCX0\" data-ccp-charstyle=\"Hyperlink\">Chapter 11: \u2018Knowledge is power, and I do want to know more\u2019: Exploring assumptions around patient involvement in animal research <\/span><\/span><\/a><\/li><li><a class=\"Hyperlink SCXW31344821 BCX0\" href=\"https:\/\/www.manchesterhive.com\/display\/9781526165770\/9781526165770.00022.xml\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW31344821 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW31344821 BCX0\" data-ccp-charstyle=\"Hyperlink\">Chapter 13: Commentaries on distributing expertise and accountability\u00a0<\/span><\/span><\/a><span class=\"EOP SCXW31344821 BCX0\" data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/li><li><a class=\"Hyperlink SCXW125554885 BCX0\" href=\"https:\/\/www.manchesterhive.com\/display\/9781526165770\/9781526165770.00024.xml\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW125554885 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW125554885 BCX0\" data-ccp-charstyle=\"Hyperlink\">Chapter 14: The Mouse Exchange: What can curiosity-driven public engagement activities contribute to dialogues about animal research?\u00a0<\/span><\/span><\/a><span class=\"EOP SCXW125554885 BCX0\" data-ccp-props=\"{&quot;134233117&quot;:false,&quot;134233118&quot;:false,&quot;335551550&quot;:0,&quot;335551620&quot;:0,&quot;335559685&quot;:-20,&quot;335559737&quot;:-20,&quot;335559738&quot;:0,&quot;335559739&quot;:0}\">\u00a0<\/span><\/li><li><a class=\"Hyperlink SCXW264570283 BCX0\" href=\"https:\/\/www.manchesterhive.com\/display\/9781526165770\/9781526165770.00027.xml\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined SCXW264570283 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW264570283 BCX0\" data-ccp-charstyle=\"Hyperlink\">Chapter 17: Commentaries on experimenting with openness and engagement<\/span><\/span><\/a><span class=\"EOP SCXW264570283 BCX0\" data-ccp-props=\"{&quot;201341983&quot;:0,&quot;335559740&quot;:259}\">\u00a0<\/span><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-12d6e36 elementor-hidden-tablet elementor-hidden-mobile\" data-id=\"12d6e36\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Resources for Researchers Engaging patients in preclinical laboratory research can help to improve research relevance and quality, allows for mutual learning opportunities (e.g. researchers can learn more about the day-to-day realities of the condition they study and patients can learn more about ongoing research), and can enhance researcher communication skills. Patient engagement does not refer [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-17375","page","type-page","status-publish","hentry"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/pages\/17375","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/labpartners.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=17375"}],"version-history":[{"count":354,"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/pages\/17375\/revisions"}],"predecessor-version":[{"id":19163,"href":"https:\/\/labpartners.ca\/index.php?rest_route=\/wp\/v2\/pages\/17375\/revisions\/19163"}],"wp:attachment":[{"href":"https:\/\/labpartners.ca\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=17375"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}