in Preclinical
Laboratory Research
Introduction To Patient Engagement In Preclinical Laboratory Research
Our website is a comprehensive one-stop shop, which offers valuable content for different audiences, ensuring that all stakeholders can actively collaborate and contribute to the advancement of research.
Patient engagement in research is the meaningful collaboration between researchers and individuals with lived experience of a health condition. Patient engagement helps tailor research to better align with its end users’ needs.
Patient engagement does not refer to participation in research (e.g. sample donation, advocacy). However, it is about the active involvement of patient partners throughout the full research process including being involved in priority setting, question development, and dissemination of results.
Our team is dedicated to promoting and championing patient engagement in basic science and preclinical laboratory research. This type of research often includes studies using cell and animal models.
Explore the resources tailored to your needs
Patient engagement improves research quality and enhances outcomes through collaborative efforts. There are key considerations and resources for getting started depending on which perspective you bring to the table. Click on the appropriate icon below to learn more.
Benefits Of Patient Engagement In
Preclinical Laboratory Research
Guiding Framework for Patient Engagement in Preclinical Laboratory Research
Policy Brief : Engaging Patients as Partners in Preclinical Laboratory Research
A policy brief offering a clear overview of preclinical patient engagement, coupled with suggestions for decision-makers implementing this practice.
Examples
We wanted to keep things out in the open, to help the [glycogen storage disease] community feel part of the research, to feel invested and empowered.
Dr. David Weinstein
DOCTORAs someone without a personal connection to ovarian cancer, this experience has transformed my research, infusing it with a sense of grounding and humanity.
Emma Gerber
PhD Student in Ovarian Cancer ResearchIt’s an honour to engage with the fantastic NPSP team. The values of the team encourage a multidisciplinary approach that drives ground-breaking research.
Marie-Maxime
PATIENT PARTNERI’ve learned so much from being involved with the NPSP that I never knew about pre-clinical research. The team has been great when me and other patient partners have questions about their work. This collaborative environment makes me feel positive about our future work together.